San Antonio parents fundraise for newborn with ultra-rare disease
A 17-month-old boy in San Antonio, Texas, has been diagnosed with Farber disease, an ultra-rare and terminal genetic disorder. His family is raising funds to cover medical care, therapies, and related expenses as they navigate complex treatment needs. The case highlights the medical, financial, and emotional challenges faced by families dealing with rare genetic conditions and the critical role of community and public support in managing long-term care.